‘Anchor Necklace’ for Girl, 14, in the US says mom of girl, who has Down syndrome, finds new way to express her love
Posted October 19, 2018 08:50:33A new bracelet, which can be worn by any girl with Down syndrome in the United States, has become a symbol of a new kind of connection.
The bracelet, named Anchor Necklaces, was designed by two children from New York and Brooklyn, but it’s also an important symbol for a small but growing community of parents, friends and families who want to express their love for their daughter, a 14-year-old girl with a rare genetic disorder.
The idea for the bracelet came to Katie Tipton, Katie’s mother and a mother herself, while Katie was in the middle of a difficult journey with the medical condition.
Katie was diagnosed with Down Syndrome when she was 4 years old and is now in the sixth year of a phase one clinical trial to determine if the condition causes other disabilities.
Katie, who is wheelchair-bound, has autism and is often teased for having a different appearance than her peers.
Katy’s family believes that her condition is just a symptom of something deeper that causes the world to be so cruel and unfair.
Katie’s father, Mark, is also a pediatrician who treats many children with Down’s Syndrome and says he wants to use the bracelet to show support.
“I don’t want it to be a symbol for me to get emotional about.
I want it as a way to help the world,” he said.
“There is a lot of anger about the fact that children with disabilities are discriminated against.
The bracelet is designed to show that the world cares about people with disabilities and to be kind to them.”
Katie and her father Mark have been fundraising to make the bracelet and have raised almost $200,000 since they first started raising funds.
They say they hope to eventually make the bracelets available to parents with children with the condition, as well as children with special needs.
Katies mom, Kristin, and her husband, Mike, say they are also working to make a small number of the bracels available to other families with children who are also affected by the condition.
“We’re really excited to have the opportunity to create a new way of making connections,” Kristin Tiptons said.
“It’s been an honor and a privilege to work with this company, and to see their support and the response to the braceles.”
In the United Kingdom, there are several similar bracelets on the market, including the “Pair of Parents” for families of children with autism.
“Our goal is to have this bracelet in every child’s hands and to show them that they are loved and appreciated,” the Tiptones said.
The bracelets are designed to connect with a parent’s emotional response to their child’s condition.
Kristin and Mike Tiptont have also developed a crowdfunding campaign to make sure they can make the device available to all parents of children who have Down Syndrome.
Kristi Tiptona says the bracelet is meant to express the unconditional love of a parent, not an emotional response.
“This is the only bracelet I can give to my child,” Kristi Tipon said.